After his six-year-old son Tim was diagnosed with neuronal ceroid lipofuscinosis (NCL), Dr. Frank Husemann founded the non-profit NCL Foundation, which he supports in a voluntarily capacity. Back in 2002/2003 the founding of the NCL Foundation was the national service project of Round Table Germany and some tables still support us. The NCL Foundation is the largest single sponsor of scholarships in this field and connects research worldwide.
On 1st October 2015, Dr. Frank Husemann was awarded the Federal Cross of Merit for his extraordinary engagement.
From left to right:
Christina Jädke (Administration)
Dr. Herman van der Putten (Research)
Carolin Kirchmann (Fundraising)
Dr. Frank Stehr (CEO)
Dr. Birgit Faßbender (Science Communications; not in the pic.)
Alexandra Beyer (Communications & Marketing; not in the pic.)
Tiziana Sandmaier (Education & Fundraising); not in the pic.)
Our small team is also supported by many volunteers and diligent trainees.
Dr. Frank Stehr – CEO
+49 40 69 666 74-11
Dr. Herman van der Putten – Research
+49 163 73 830 83
herman.vanderputten@ncl-stiftung.de
Our honorary foundation council supports the CEO in a voluntarily capacity.
From left to right:
Dr. Frank Husemann
Martin Hartleif
Alexander Rößler
Dr. Rainer Kuhn
© Andreas Überschär
The honorary scientific advisory council helps with all issues concerning science and research. From left to right:
Prof. Beverly Davidson
Prof. Robert Steinfeld
Dr. Angela Schulz
Inset photo:
Dr. Rebecca Ahrens-Nicklas
Dr. Graeme Bilbe
The honorary board of trustees carries the subject of NCL into the public.
From left to right:
Ralf Sigrist
Hubert Neubacher
Birgit Saatrübe
Lutz Marmor
Sigrid Bauschert
Olaf Rotax
(not in the picture: Werner Schulze-Erdel)
© Thomas Meyer